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09/01/05 14:58:00 - About this site...

Aren is recovering from a bone marrow transplant to fix the immune deficiency that killed his younger sister. To read more about her story, click here. Aren's story has been similar, but we're praying that with this bone marrow transplant his story will be much longer and have a happier ending :)

Lily was diagnosed with Severe Combined Immune Deficiency. Aren has always been much healthier than Lily ever was, so they basically left off the word "Severe" in his diagnosis. It is still a serious problem, and it has been estimated that 1 in 1,000 children have some sort of immune deficiency (although SCID afflicts only about 1 in 100,000). For more information see some of these links:

The SCID Homepage
KidsHealth.org Article on SCID
National Institues of Health Article (pretty technical)
A Call for Early Diagnosis



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Comments

Velda wrote:
By the way, if you want to know why it's "to the moon and back" read Lily's story.
17/11 14:41:28

elizamccall wrote:
I found your site through a posting you made on the CAM board on WW. I read your story and the story of your beautiful children. Having recently become a mom (DS is 8 mos.), it was all I could do not to just smother him hugging him after reading.

I just have to say how incredibly proud I am of your faith in our Lord Jesus Christ and in your testimony. Please know that I will be praying for all of you and thanking Him for your witness to others and for Lily's witness as well.

You are blessings and testaments to His strength. I applaud you for that.

In Him,
Eliza
25/08 18:04:40

americanairlines wrote:
Hi 2 all! nice work!
14/03 23:54:19

SHEENA SCOTT wrote:
HELLO! I FEEL YOUR LOST ,WE LOST OUR GRANDSON DYLAN CARL SCOTT 11MOS 25 DAYS OLD TO XSCIDS ,HIS BROTHER JORDAN WAS BORN WITH IT IN SEPT /95 HAD BMT DUKES STAYED THERE 17 MOS NOW 13 AND HEALTHY !DYLAN HAD BMT MARCH 8 98 AT KY UNIVERSITY LOST HIM 5 DAYS BEFORE FIRST BIRTHDAY !COMPLACTIONS FROM FLU/SCIDS,HE HAS A SISTER WHO COULD BE A SCID CARRIER ,SHE IS 7 ,NEW BABY JACOB HARRISON SCOTT BORN MAR 3 08 BMT DUKES MARCH 25 08 PRAYING HE'LL GET FULL IMMUNESYSTEM,SO FAR GOOD !KEEP YOU AND YOURS IN OUR PRAYERS SHEENA SCOTT
22/10 07:38:56

Elle Smith Fagan wrote:
hi Harpers

I am the lady who did up the little painting of Lily in the Pink Hat.

Just wondering about you-all.

I have good news I am UNdisabled!
Finally making the normal income from my art and , although there is one pothole/controversy, it looks like it will all work out.

I am so grateful to be mended and running around again , doing good work...I did a dual suit Arts/response work for a long time, but stick to my art now, and simply donate some of the art to raise funds, with some success...no more ground zeros for me.
I think I am doing more good with the donations I have raised so far, than I could ever have done with my one little body on site.

I hope your news is as good!
I have new honors in my work too and financial help to properly market the artwork.

"Ah! Si Bon Est Le Bon Dieu!" ..."Ah! How good the Good God is!" - Saint Julie Billiart , founder of the Sisters of Notre Dame De Namours.
p.s. are you still doing the site?
I see the entries are not recent.
elle
ellefagan.com
27/04 13:51:25

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