|Home Lily's Site Rick's Blog Register About|
Next | Previous
03/17/06 06:22:20 - News
Well, one out of three isn’t bad. Tomorrow is officially my last day at Domino’s. Aren’s a bit disappointed that I won’t get to deliver pizza to him anymore – though not as disappointed as he is that I’m keeping my “morning job”. So now, maybe I’ll have time to post a bit more regularly. That’s all the news about me – and we all know the only reason that anyone reads this website is to find out about my gloriousness.
There are, however, a few tidbits of information about Aren that one or two of you might like to know. About a month ago, two volunteers from the Make-A-Wish Foundation came to visit. Aren was so ready with his wish (to go to Disney World and meet Spider-man) that when they asked him for a second choice, he just stared at them. Finally we were able to convince him that if he didn’t get Disney World, a shopping spree at Best Buy would be acceptable. And no, if that one happens, we won’t be getting a plasma TV. It would be much easier to convince him to go for the Xbox 360.
But I digress. We haven’t heard back as to whether or not his wish has been approved (or should I say “granted”?), but Liz and her husband Kevin said that Disney wishes are almost always approved. (Interesting “Small World” sidenote: Liz and Kevin both work at Sierra Vista Regional Medical Center, and not only worked with Lily, but they remembered her.)
Aren’s treatment is also going very well. He is seeing Dr. Graham and Dr. Andriansky once every two weeks, now and should have his central line removed within the next ten days or so. His hair is coming back quite nicely, although he has these killer “Elvis” chops from the cyclosporine. (I keep wish that it were Halloween. We could tape some claws on his hands and he’d make a great Wolverine.)The biggest excitement is that now, for the first time in three and a half years, Aren is not taking any prednisone. We can already see the effects. One of the side effects of prednisone is muscle weakness resulting in fatigue. Today he went to the Tucson zoo with MaryBeth. For the first time in about two years, he actually walked around (under his own power) for the better part of two hours without complaining.
So, in a nutshell, things are going well. Now, if only I could convince him that “Yu-Gi-Oh” is better as Solitaire…
Did you like this article? Or not so much? Login to post your comments!
Aren is undergoing a bone marrow transplant to fix the immune system defects that caused the loss of his little sister, Lily. To learn more, click here.
|Powered by Nucleus CMS v3.32 - Contact Webmaster|